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Monday
May122014

Change the World - DBlogWeek Day 1

Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you. (Thanks go out to Kim of Texting my Pancreas for inspiring this topic.


My Aunt is struggling. She has type 2 diabetes and has made some serious changing to her life to fight back. But lately it seems everything she does is never enough and this continuing spinning of her wheels is bringing her down.

When I read the prompt for today's post it made me think of my dear aunt and what she is going through. She started to eat right, skip snacks and sweets she sould sneak now and then, and started exercising. It has gotten to the point now where she will skip meals to keep her blood sugar down. 

Why? Why would she do this? Because of insulin. Or I should say, insulin injections.

The fear and disappointment she feels makes me terribly sad. After talking to my cousin about it she said that her mom is so scared of going blind and losing her limbs that she thinks starting insulin is the end of her life.

I explained to her that high numbers are what she needs to worry about, not taking insulin. Insulin can help her keep her numbers in tighter control which could help her avoid complications. Insulin is not the enemy or a punishment for a job poorly done. 

This is what really grinds my gears. Doctors that threaten with insulin. Doctors that say, "if you don't do _____ you are going to end up on insulin!" So what happens if you do need it? Are you being bad? Are you to blame? Are you a failure? 

Why not let PWT2D know that doing all they can may not be enough and if it is not then insulin may be needed. We are not there yet but if the time comes you may need to take shots to control your numbers. Say something like, "our goal is to keep your numbers as tight and steady as we can! We can work with all the tools we need as we need them but you are not alone! We are going to get through this together!" 

Those tools may be change in diet, pills, exercise, insulin, and who knows what else! There is a way to approach it that does not make the patient feel like a failure or that they are getting what they deserve. 

No one asked for diabetes and no one wants complications from it. And I know that this sort of "motivation" does not actually motivate. It makes me shut down, give up, and find a tub of ice cream to dive into.

Insulin is not an enemy or a punishment! 

</rant>

 

Tuesday
May062014

Hope Matters

Hate. I hate diabetes. I hate all the shots, the complications, the frustrations. The feeling like you are falling down a bottomless pit with no end in sight. No cure in sight. Nothing but years and years ahead with 24/7 management that never seems to get any easier. It is all so very easy to hate.

But although there may not be a cure for this disease there is a cure for the hate. A cure for the anger and frustration. A cure for that feeling like nothing is going to get better.

Hope.

Hope is a little thing that makes a big difference. With a little bit of hope you can look for a brighter tomorrow and a lighter load. Hope can encourage you to try again and to stick with it! Hope can motivate, comfort, and completely transform your mood.

What do I hope for? I hope that tomorrow my blood sugars will be right where I want them. I hope that my friends who live with diabetes will have A1C’s where they want and complication free lives. I hope those who care for people with diabetes find support and comfort in their own frustrations. I hope that those of us who do have diabetes and complications from it find help and whatever they need to feel whole again.

I hope for wholeness for all PWD’s.

On May 20th at 12PM EST I will be participating in the 2nd annual Diabetes Hope Conference. I will be on one of the three panels discussing complications from diabetes and hope. The conference is completely free and is all online. Last year was really great and I am very thankful I was asked to be involved again. This year I am on a panel about the doctor/patient relationship which is something I have a lot to say about.

The complications I live with got the best of me for a long time. That feeling of hate was overwhelming and would spill into every aspect of my life. When I found some hope and some help things got better and I refuse to let diabetes or its complications complicate or ruin my life.

I hope you check out the site and RSVP for the conference. I truly think it is extremely helpful to be hopeful and together we can talk about the things that bring us down so maybe we can eliminate all the hate and anger we feel.

None of us should every feel alone or hopeless.

I hope no one ever does. 

Monday
Apr282014

Three Words

“Go Red Rider!”

Every time I heard those three words I would feel a lump in my throat and a boost of power in my body.

Yesterday I rode in my 2nd ADA Tour de Cure bike ride.

The weather was perfect and the setting was beautiful. Out by the beach the entire time with the sun shining down through a cool breeze that made the ride fantastic.

And those words, those three words made me feel proud of my little accomplishment. It made me feel good each time I could ride next to a Red Rider and say those words to them.

Thank you to everyone who donated and encouraged me to do this. And thank you Team Ninjabetic for supporting me and riding with me!

The plan is to continue riding so next year we can take a longer route, raise more money, and have an even bigger team!

Thanks again for all of your support! I could not have done it without all of you encouraging me and believing in me. And I definitely could not have done it without those words…

GO RED RIDER!

Friday
Apr252014

THANK YOU!!!

Seriously? I don't even know what to say except thank you so much for your support.

For those of you who helped me to reach my goal I want to thank you for lifting my spirits when I was feeling pretty down at the beginning of the week. Thank you so much for that.

And for those of you who donated to my ride back when I first announced it, I apologize for not doing what I set out to do, what I told you was going to do. I hope you can forgive me. I promise to be more realistic in the future so I don't let anyone down.

For those of you would like to donate to my ride, there is still time! Click on the link below.

I cannot wait to ride and represent Team Ninjabetic once again! 

Much love to you all!

 

Wednesday
Apr232014

Diabetes Court - Ninjabetic TV

My good friend Brad and I made a new short for Ninjabetic TV called "Diabetes Court." Imagine taking your pancreas to court and suing it for pain and suffering. Well that is exactly what Brad does and I wonder what Brad's pancreas has to say for itself?

I hope you like it! It was a ton of fun making it.

Check out other episodes of Ninjabetic TV by visiting NinjabeticTV.com