
By now you have probably heard about the drama around the DOC regarding a diabetes "cure" and the DRI and a blog post and expectations, anger, disappointment, and frustations.
I am sure also you have formed your opinion about it all and have probably seen many other opinions about it.
No one is asking me what I think and frankly I don't think it really matters but I do have one thing I want to say that kind of ties in.
I spend way too much money, energy, time, emotions, and brain power just living with diabetes every single day of my life. EVERY SINGLE DAY. You all know all the struggles and issues that come along with it and it is never easy.
Although I may not always be optomistic I am an avid dreamer. I always dream about the future and what it will bring. Where will I be and what will I do years from now? Will I ever reach my dreams and do what I really want to with my life? I dream about my future but I don't hope for it. I save my hope.
I save my hope for every morning. I save my hope for getting through a scary low or nagivating highs without ending up in DKA. I save it for bolusing correctly and setting temporary basal rates for exercise.
My hope is for now and five minutes from now. That I am going to get through this every day. I hope I can.
My daily need for hope leads me to not spend too much of it on something 5-10 years away. I need my hope now. My future is a lot closer than potential cures and I have to save my hope for that.
Never would I blame anyone for hoping and it hurts me to know so many were hurt. For that I am so sorry and very sad.
Never would I blame someone for wanting to get people excited about a hope. When I hear of a good thing I always want to share it with the world!
The one thing that really REALLY bothered me was the feeling that if I (Me, George Simmons) did not send money this hope that everyone had would fizzle. And now it's my fault.
I always tell people to blame diabetes and not themselves for complications, high bg's, or anything else that frustrates us about diabetes. We do the best we can every day and we should not be blamed for our best not being enough.
Hearing about new things in the future allows me to dream, not hope. My only hope is that the DRI would redo that video to cut out the "It depends on you" message at the end.
If it was up to me I would never ask the people who are suffering from a disease for the money to find a cure for themselves. I'd tell them how I was going to do whatever it took to find the money somewhere and maybe see if they want to help. But to lay the burden on the ones WITH ALL THE BURDENS seems mean.
I hope that makes some sense and I hope I haven't disrupted your hope.